Case identification and follow up will be undertaken in the same way at DGH and specialist units.

​

• For cases referred to specialist units from DGHs within the collection period, each of the units involved in a patient’s pathway will be expected to collect and upload data throughout their own respective follow up periods (i.e. from patient pathway Day Zero).

• Each unit will be responsible for collecting and uploading data on any investigations or intervention they request and any results they have access to.

After each case identifier has been pseudonymised using the supplied OpenPseudonymiser application, all data will be collected on Research Electronic Data Capture (REDCap) (see Appendix 3 for details).

 

Ideally data will be directly uploaded on to REDCap – either by web interface on a computer, tablet, or via a smartphone app. In the absence of the above facilities, paper transcription prior to upload on to REDCap is permissible. 

​

​

​

​

​

​